Jane L Edwards

Learning to Live behind my smile

  • Blog Feed
  • Prednisolone withdrawal.
  • This is my fatigue.
  • Rituximab infusion, things I wish I had known
  • Go listen to my interview on Fight Like a Mama podcast.
  • Some days are flat
  • Coming out of shielding
  • COVID-19: Vulnerability and the Serenity Prayer
  • New book published: Chronic Illness: learning to live behind my smile
  • Hey Politicians, remember there are more than two sides to a story
  • Long term illness and pets.
  • Interview with the UK Daily Mirror
  • Six and a half hours I will never get back!
  • We wait for the COVID-19 vaccine to take control. But I hope for a different cure.
  • Stress: oh no, please don’t cause a flare!
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • Share Icon
  • 16th Jan 2022

    This is my fatigue.

    This is my fatigue.

    My fatigue is a mix of physical and mental symptoms, sometimes it is not easy to split these two areas, but I will try. Often, I feel the physical is easier to describe, less subjective and more “believable”; I don’t really understand why I think this way, I just know that I do.

  • 11th Nov 2021

    Long term illness and pets.

    Long term illness and pets.

    Pets and how they help those of us with chronic illness.

  • 14th Sep 2021

    Interview with the UK Daily Mirror

    Interview with the UK Daily Mirror

    ‘Please carry on wearing masks after Freedom Day – it could save lives like mine’

  • 9th Jul 2021

    We wait for the COVID-19 vaccine to take control. But I hope for a different cure.

    We wait for the COVID-19 vaccine to take control. But I hope for a different cure.

    The world waits for the COVID-19 vaccines to make a difference. For immunisation to change our world and allow us to go back to reality, return to the office, go to the pub, fly away to the tropics, a normal life. I have this feeling; I want an ordinary life. I want Covid to go […]

  • 14th May 2021

    Prednisolone withdrawal.

    Prednisolone withdrawal.

    Prednisolone, steroids, pred, miracle drug, whatever we call them, these drugs are powerful beasts. They may be small, but they are mighty. If they were a dog, they would be a chihuahua tiny but with a massive impact on your life. I have been on Prednisolone at various doses for nine years. They have left […]

  • 3rd Jul 2020

    Rituximab infusion, things I wish I had known

    Please note this is my personal experience of Rituximab, your treatment may vary, you should discuss your individual plan with your doctor. I am not providing any personal advice. So you need to have a biological infusion? My first thoughts were: What the hell is that? How long will it take? Will it hurt? And […]

  • 12th Mar 2021

    Go listen to my interview on Fight Like a Mama podcast.

    A few weeks ago, the lovely Felicia Distad invited me to be part of her excellent podcast series. She describes the podcast as: Let’s talk about ALL THE THINGS. Health, family, friendships, kids, work, and how to show up every day and fight through it all. Lady, I’ll remind you that you can do hard […]

  • 10th Jan 2021

    Some days are flat

    Some days I feel very flat, not flat-chested, flatlined or flat earthed, just plain flat; the feeling where you really don’t care what happens, what you eat or wear. I’m not sure if you class it as fatigue, depression or some other title that may fit the mood. I don’t like to admit that any […]

  • 23rd Oct 2020

    Hey Politicians, remember there are more than two sides to a story

    Hey Politicians, remember there are more than two sides to a story

    I am so tired of governments assuming that we are on one side or the other of an argument! We are all either Brexiter or Remainer, believe COVID is real, or we don’t, and we are racist or not. There is an assumption that we pick a political party and cannot ever agree with the […]

  • 5th Sep 2020

    Coming out of shielding

    I recently wrote a blog for the UK based Genetic Alliance about my feelings on coming out of ‘Shielding’ and how I feel I can return to life after the COVID 19 initial pandamic response. Please have a read at the link below. https://covid-19.geneticalliance.org.uk/news/coming-out-of-shielding/

  • 3rd Jul 2020

    COVID-19: Vulnerability and the Serenity Prayer

    I have thought long and hard about how to approach this blog; it is such a hard situation to write about. Half of me wants to make it light and supportive, but half of me is terrified that I am sitting here waiting for death to arrive at my door. I’m immune-suppressed and classed as […]

1 2
Next Page→

Powered by WordPress.com.

 

Loading Comments...
 

    • Follow Following
      • Jane L Edwards
      • Join 1,109 other followers
      • Already have a WordPress.com account? Log in now.
      • Jane L Edwards
      • Edit Site
      • Follow Following
      • Sign up
      • Log in
      • Report this content
      • View site in Reader
      • Manage subscriptions
      • Collapse this bar