Tag: Prednisolone

Chronic illness, Interviews, Mental Health

Fighting ANCA-Associated Vasculitis: A Personal Story

My interview with Health Central: Fighting for Her Future Diagnosed with ANCA-associated vasculitis, Jane Edwards has learned that the right attitude is everything in managing this chronic disease. Updated Jul 9, 2024 By Claire Gillespie Medical Reviewer Harley Cohen, M.D. https://www.healthcentral.com/condition/vasculitis/fighting-for-her-future Multiple medications and more tests later, Edwards received a diagnosis: granulomatosis with polyangiitis (GPA), a type of ANCA-associated vasculitis formerly known as Wegener’s granulomatosis. The … Continue reading Fighting ANCA-Associated Vasculitis: A Personal Story

Unknown's avatarJane L EdwardsLeave a comment
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Chronic illness, Clinical Research, politics

We wait for the COVID-19 vaccine to take control. But I hope for a different cure.

The world waits for the COVID-19 vaccines to make a difference. For immunisation to change our world and allow us to go back to reality, return to the office, go to the pub, fly away to the tropics, a normal life. I have this feeling; I want an ordinary life. I want Covid to go away so that I can travel and visit my Mum … Continue reading We wait for the COVID-19 vaccine to take control. But I hope for a different cure.

Unknown's avatarJane L Edwards1 Comment
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Chronic illness

Prednisolone withdrawal.

Prednisolone, steroids, pred, miracle drug, whatever we call them, these drugs are powerful beasts. They may be small, but they are mighty. If they were a dog, they would be a chihuahua tiny but with a massive impact on your life. I have been on Prednisolone at various doses for nine years. They have left me swollen, overweight, irritable but alive, and there is the … Continue reading Prednisolone withdrawal.

Unknown's avatarJane L Edwards10 Comments
Chronic illness, Mental Health

New book published: Chronic Illness: learning to live behind my smile

Today I launch my first book, I’m nervous, excited and also terrified. The book started as my own therapy of how to deal with everything that was changing in my life, and then I started to write down things I had learnt along the journey. And then I thought that the insights we had gain may just help somebody else. And so the idea of a book formed. Continue reading New book published: Chronic Illness: learning to live behind my smile

Unknown's avatarJane L EdwardsLeave a comment