Chronic illness, Interviews, Mental Health

Fighting ANCA-Associated Vasculitis: A Personal Story

My interview with Health Central: Fighting for Her Future Diagnosed with ANCA-associated vasculitis, Jane Edwards has learned that the right attitude is everything in managing this chronic disease. Updated Jul 9, 2024 By Claire Gillespie Medical Reviewer Harley Cohen, M.D. https://www.healthcentral.com/condition/vasculitis/fighting-for-her-future Multiple medications and more tests later, Edwards received a diagnosis: granulomatosis with polyangiitis (GPA), a type of ANCA-associated vasculitis formerly known as Wegener’s granulomatosis. The … Continue reading Fighting ANCA-Associated Vasculitis: A Personal Story

Jane L Edwards13th Mar 202512th Mar 2025Leave a comment

Chronic illness

Ten years since my chronic diagnosis

But overall, I have a new life, one that wasn’t planned and one that is restricted in some parts. But I think it is a life filled with love and respect and the new version of my life is quite lovely; I think I will keep it, drugs and all. Continue reading Ten years since my chronic diagnosis

Jane L Edwards22nd May 202225th May 2022Leave a comment

Chronic illness

This is my fatigue.

My fatigue is a mix of physical and mental symptoms, sometimes it is not easy to split these two areas, but I will try. Often, I feel the physical is easier to describe, less subjective and more “believable”; I don’t really understand why I think this way, I just know that I do. Continue reading This is my fatigue.

Jane L Edwards16th Jan 20225 Comments

Chronic illness, pets

Long term illness and pets.

Pets and how they help those of us with chronic illness. Continue reading Long term illness and pets.

Jane L Edwards11th Nov 202128th Sep 20221 Comment

Chronic illness, Clinical Research, politics

We wait for the COVID-19 vaccine to take control. But I hope for a different cure.

The world waits for the COVID-19 vaccines to make a difference. For immunisation to change our world and allow us to go back to reality, return to the office, go to the pub, fly away to the tropics, a normal life. I have this feeling; I want an ordinary life. I want Covid to go away so that I can travel and visit my Mum … Continue reading We wait for the COVID-19 vaccine to take control. But I hope for a different cure.

Jane L Edwards9th Jul 202128th Sep 20221 Comment

Chronic illness, Mental Health

Some days are flat

Some days I feel very flat, not flat-chested, flatlined or flat earthed, just plain flat; the feeling where you really don’t care what happens, what you eat or wear. I’m not sure if you class it as fatigue, depression or some other title that may fit the mood. I don’t like to admit that any of these words apply to me, so it is merely … Continue reading Some days are flat

Jane L Edwards10th Jan 202128th Sep 2022Leave a comment

Chronic illness, Mental Health

New book published: Chronic Illness: learning to live behind my smile

Today I launch my first book, I’m nervous, excited and also terrified. The book started as my own therapy of how to deal with everything that was changing in my life, and then I started to write down things I had learnt along the journey. And then I thought that the insights we had gain may just help somebody else. And so the idea of a book formed. Continue reading New book published: Chronic Illness: learning to live behind my smile

Jane L Edwards3rd Jul 202012th Mar 2025Leave a comment