Chronic illness, Interviews, Mental Health

Fighting ANCA-Associated Vasculitis: A Personal Story

My interview with Health Central: Fighting for Her Future Diagnosed with ANCA-associated vasculitis, Jane Edwards has learned that the right attitude is everything in managing this chronic disease. Updated Jul 9, 2024 By Claire Gillespie Medical Reviewer Harley Cohen, M.D. https://www.healthcentral.com/condition/vasculitis/fighting-for-her-future Multiple medications and more tests later, Edwards received a diagnosis: granulomatosis with polyangiitis (GPA), a type of ANCA-associated vasculitis formerly known as Wegener’s granulomatosis. The … Continue reading Fighting ANCA-Associated Vasculitis: A Personal Story

Jane L Edwards13th Mar 202512th Mar 2025Leave a comment

Chronic illness, Mental Health

Some days are flat

Some days I feel very flat, not flat-chested, flatlined or flat earthed, just plain flat; the feeling where you really don’t care what happens, what you eat or wear. I’m not sure if you class it as fatigue, depression or some other title that may fit the mood. I don’t like to admit that any of these words apply to me, so it is merely … Continue reading Some days are flat

Jane L Edwards10th Jan 202128th Sep 2022Leave a comment

Chronic illness, Mental Health

Coming out of shielding

I recently wrote a blog for the UK based Genetic Alliance about my feelings on coming out of ‘Shielding’ and how I feel I can return to life after the COVID 19 initial pandamic response. Please have a read at the link below. https://covid-19.geneticalliance.org.uk/news/coming-out-of-shielding/ Continue reading Coming out of shielding

Jane L Edwards5th Sep 202028th Sep 20221 Comment

Chronic illness, Mental Health

COVID-19: Vulnerability and the Serenity Prayer

I have thought long and hard about how to approach this blog; it is such a hard situation to write about. Half of me wants to make it light and supportive, but half of me is terrified that I am sitting here waiting for death to arrive at my door. I’m immune-suppressed and classed as high-risk, the UK government has asked me to ‘shield’ for … Continue reading COVID-19: Vulnerability and the Serenity Prayer

Jane L Edwards3rd Jul 202028th Sep 2022Leave a comment

Chronic illness, Mental Health

New book published: Chronic Illness: learning to live behind my smile

Today I launch my first book, I’m nervous, excited and also terrified. The book started as my own therapy of how to deal with everything that was changing in my life, and then I started to write down things I had learnt along the journey. And then I thought that the insights we had gain may just help somebody else. And so the idea of a book formed. Continue reading New book published: Chronic Illness: learning to live behind my smile

Jane L Edwards3rd Jul 202012th Mar 2025Leave a comment