My interview with Health Central: Fighting for Her Future
Diagnosed with ANCA-associated vasculitis, Jane Edwards has learned that the right attitude is everything in managing this chronic disease.
Updated Jul 9, 2024
By Claire Gillespie
Medical Reviewer Harley Cohen, M.D.
https://www.healthcentral.com/condition/vasculitis/fighting-for-her-future

Multiple medications and more tests later, Edwards received a diagnosis: granulomatosis with polyangiitis (GPA), a type of ANCA-associated vasculitis formerly known as Wegener’s granulomatosis. The effects are wide-ranging. “GPA, which affects my small blood vessels, has left lasting damage to my kidneys, eyes, nose, and ears,” she says. Complicating matters, Edwards was also diagnosed with large vessel vasculitis, chronic periaortitis, hypothyroidism, and adrenal insufficiency (due to receiving many steroid doses over years of illness).
https://www.healthcentral.com/condition/vasculitis/fighting-for-her-future
Jane Edwards is the author of ‘Chronic Illness: Learning to live behind my smile‘, about a journey of learning to live with a rare, invisible chronic illness.
Facebook: @JaneLEdwards.Author
Instagram: instagram.com/jane.l.edwards/
Twitter: @Jane_L_Edwards
Website: chronicillness.co.uk