Fighting ANCA-Associated Vasculitis: A Personal Story

My interview with Health Central: Fighting for Her Future

Diagnosed with ANCA-associated vasculitis, Jane Edwards has learned that the right attitude is everything in managing this chronic disease.

Updated Jul 9, 2024

By Claire Gillespie

Medical Reviewer Harley Cohen, M.D.

https://www.healthcentral.com/condition/vasculitis/fighting-for-her-future

Trying to live with a positive attitude.

Multiple medications and more tests later, Edwards received a diagnosis: granulomatosis with polyangiitis (GPA), a type of ANCA-associated vasculitis formerly known as Wegener’s granulomatosis. The effects are wide-ranging. “GPA, which affects my small blood vessels, has left lasting damage to my kidneys, eyes, nose, and ears,” she says. Complicating matters, Edwards was also diagnosed with large vessel vasculitis, chronic periaortitis, hypothyroidism, and adrenal insufficiency (due to receiving many steroid doses over years of illness).

https://www.healthcentral.com/condition/vasculitis/fighting-for-her-future

Jane Edwards is the author of ‘Chronic Illness: Learning to live behind my smile‘, about a journey of learning to live with a rare, invisible chronic illness.

Facebook: @JaneLEdwards.Author

Instagram: instagram.com/jane.l.edwards/

Twitter: @Jane_L_Edwards

Website: chronicillness.co.uk

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