Category: Uncategorized
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Interview with the UK Daily Mirror
‘Please carry on wearing masks after Freedom Day – it could save lives like mine’
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We wait for the COVID-19 vaccine to take control. But I hope for a different cure.
The world waits for the COVID-19 vaccines to make a difference. For immunisation to change our world and allow us to go back to reality, return to the office, go to the pub, fly away to the tropics, a normal life. I have this feeling; I want an ordinary life. I want Covid to go […]
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Prednisolone withdrawal.
Prednisolone, steroids, pred, miracle drug, whatever we call them, these drugs are powerful beasts. They may be small, but they are mighty. If they were a dog, they would be a chihuahua tiny but with a massive impact on your life. I have been on Prednisolone at various doses for nine years. They have left […]
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Go listen to my interview on Fight Like a Mama podcast.
A few weeks ago, the lovely Felicia Distad invited me to be part of her excellent podcast series. She describes the podcast as: Let’s talk about ALL THE THINGS. Health, family, friendships, kids, work, and how to show up every day and fight through it all. Lady, I’ll remind you that you can do hard […]
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Some days are flat
Some days I feel very flat, not flat-chested, flatlined or flat earthed, just plain flat; the feeling where you really don’t care what happens, what you eat or wear. I’m not sure if you class it as fatigue, depression or some other title that may fit the mood. I don’t like to admit that any […]
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Hey Politicians, remember there are more than two sides to a story
I am so tired of governments assuming that we are on one side or the other of an argument! We are all either Brexiter or Remainer, believe COVID is real, or we don’t, and we are racist or not. There is an assumption that we pick a political party and cannot ever agree with the […]
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Coming out of shielding
I recently wrote a blog for the UK based Genetic Alliance about my feelings on coming out of ‘Shielding’ and how I feel I can return to life after the COVID 19 initial pandamic response. Please have a read at the link below. https://covid-19.geneticalliance.org.uk/news/coming-out-of-shielding/
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COVID-19: Vulnerability and the Serenity Prayer
I have thought long and hard about how to approach this blog; it is such a hard situation to write about. Half of me wants to make it light and supportive, but half of me is terrified that I am sitting here waiting for death to arrive at my door. I’m immune-suppressed and classed as […]
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Rituximab infusion, things I wish I had known
Please note this is my personal experience of Rituximab, your treatment may vary, you should discuss your individual plan with your doctor. I am not providing any personal advice. So you need to have a biological infusion? My first thoughts were: What the hell is that? How long will it take? Will it hurt? And […]
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New book published: Chronic Illness: learning to live behind my smile
Today I launch my first book, I’m nervous, excited and also terrified. The book started as my own therapy of how to deal with everything that was changing in my life, and then I started to write down things I had learnt along the journey. And then I thought that the insights we had gain may just help somebody else. And so the idea of a book formed.
Jane L Edwards 